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This group is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may also be of interest to caregivers, care professionals, researchers (together with advocates for the condition) and the general public.
The IBTA brings together experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of brain tumour patients and their families. Across the globe in over 100 countries we work with Alliance supporters, prospective supporters, researchers, medical professionals, pharmaceutical and device companies, government agencies, regulators, medical societies, key opinion leaders, the media and others involved in the neuro oncology community to: encourage the establishment of brain tumour patient groups in countries where they don’t yet exist promote collaboration on programmes and projects to benefit the brain tumour community advance worldwide awareness of this disease by developing and promoting activities highlighting the challenges and needs of patients and carers disseminate knowledge, information and best practice help shape health and research policies at national and international levels celebrate the courage and achievements of brain tumour survivors and carers
The Ellen MacArthur Cancer Trust is a national charity that inspires young people aged 8-24 to believe in a brighter future living through and beyond cancer.
If you’ve found Pseudomyxoma Survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface malignancy. We’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference. We’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears. Together we’re stronger and can face anything.
