Helping you Phormulate a plan
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
DM Cure DM
Our aims are: To preserve and protect good health among, and relive the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by: * providing information, help and support to such people and their families and carers; * making financial donations to support organisations and individuals carrying out research into Myotonic Dystrophy, the useful results of which will be published for public benefit; and * raising awareness of Myotonic Dystrophy within the general public, medical and scientific communities.
Annabelle's Challenge
Annabelle’s Challenge aims to promote awareness and medical research into the rare, life-threatening and incurable genetic condition Vascular Ehlers-Danlos Syndrome (vascular EDS).
It's in the Bag
We provide hands-on support for men with testicular cancer in the South-West, as well as raising awareness of the disease across the region and beyond. It’s in the Bag is run by a group of testicular cancer survivors with support from specialist NHS staff. We have three simple aims: Support Being diagnosed with testicular cancer and going through treatment is a huge challenge – physically, mentally and emotionally. We provide a range of activities and initiatives to help men through this tough time. Awareness We teach men the importance of checking their balls regularly and taking any issues straight to their GP. Spreading this knowledge promotes earlier diagnosis, which often means simpler, more effective treatment and better chances of a cure. Survival With UK cure rates for testicular cancer running above 98%, we focus on survival – helping guys tackle the emotional and practical impact of cancer, both during treatment and beyond.
FOP Friends
FOP Friends’ aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects, and support those living with FOP and their families. 2009 seems such a long time ago when our family was given the news that our first child, Oliver, had been born with fibrodysplasia ossificans progressiva (FOP). He was just one year old at the time. At that time there was a small patient group, FOP Action, but no UK charity dedicated to supporting FOP families and funding research. Along with our family and friends, we ran fundraising events to support research and raise awareness of FOP. Through this, we encountered barriers to accessing further help and funding from companies and organisations, so decided to become a fully registered charity. We received full charitable status in 2012.