European Patient Advocacy Institute

The European Patient Advocacy Institute (EPAI) is a patient-focused organization dedicated to fostering inclusive research, patient engagement, and advocacy in healthcare. It coordinates projects, develops resources, and promotes collaboration among patient groups, healthcare professionals, and research entities. EPAI aims to empower patients, support research initiatives, and influence health policy to improve patient outcomes and access to care. The organization conducts training programs, launches online courses, and hosts events to advance patient involvement in research and healthcare decision-making. EPAI provides Key Tools and Resources for patient advocates to empower advocacy efforts, navigate healthcare challenges, and drive policy change. It enables advocates to map patient pathways, understand healthcare systems, access research and data, and leverage GDPR knowledge to champion patient rights. Through tools like the Patvocates toolkit and WECAN Academy, EPAI aims to reduce disease burden, improve quality of life for patients and caregivers, and amplify patient voices worldwide. The organization's work includes facilitating access to evidence-based advocacy resources, education, and opportunities for professional development for patient advocates.