VHL UK/Ireland
VHL UK / Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness. Registered charity in England and Wales 1160381, and Ireland 20101039. Charity Trust No: CT54346.
About Us
Contact Information
England, Scotland, Wales and Northern Ireland; Ireland
Conditions We Support
Other Rare Disease
Genetic Disorders
- VHL Syndrome
Oncology
- Renal Cell Carcinoma
- CNS Hemangioblastoma
Other Rare Diseases
- Rare Cancer Types
Supportive Care
Von Hippel-Lindau Disease
Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)
- Renal Cell Carcinoma (associated with HLRCC)
Birt-Hogg-Dubé Syndrome (BHD)
- Renal Cell Carcinoma (associated with BHD)
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page

