The AADC Research Trust

The AADC Research Trust is a charitable organization dedicated to supporting research, raising awareness, and providing resources for individuals affected by AADC deficiency. It organizes conferences, webinars, and family workshops to educate and connect families, researchers, and clinicians. The Trust engages in advocacy, supports gene therapy research, and maintains a website with extensive educational materials, guidelines, and updates on clinical trials. It collaborates with international experts and institutions, and actively promotes awareness through social media channels. The organization is based in Surrey, UK, and operates globally through its online presence and international conferences.