Prader-Willi spolek

Prader-Willi spolek is a patient advocacy organization dedicated to supporting individuals with Prader-Willi syndrome and their families. The organization provides information, advocacy, and support services, including educational resources, patient support programs, and community activities. It aims to raise awareness about Prader-Willi syndrome, promote research, and improve the quality of life for affected individuals. The organization also engages in fundraising, organizes events, and collaborates with medical and research institutions to advance understanding and treatment of the syndrome. It operates primarily in the Czech Republic and offers various programs tailored to different age groups and needs of patients and families.