Organisation for Anti-Convulsant Syndrome logo

Organisation for Anti-Convulsant Syndrome

OACS Charity is a patient-led support group that provides help and support for families and friends affected by all types of epilepsy medications, especially those that may have affected children. It is a registered charity in the UK with registration number 1116497. The organization offers a helpline and various support services, advocating for individuals with anti-convulsant syndromes. OACS is a charity and support group for children born with Fetal Anti-Convulsant Syndrome (FACS) and the families that love and care for them. The organization aims to provide help and support to children with FACS and their families, assist families in their quest for a diagnosis, promote research and understanding into FACS, raise awareness of FACS, provide information concerning the additional problems caused by FACS, and develop a greater awareness of issues such as adoption, miscarriage and baby death. It seeks to build a support network throughout the UK and Europe, signpost families to other organizations, and lobby and campaign government and organizations to achieve the best outcomes for affected families, including campaigns for justice. It operates through resources such as OACS Ireland Resources and OACS Art Gallery, and maintains contact channels including a UK helpline and email.
Conditions We Support

Other Rare Disease

  • Fetal Anti-Convulsant Syndrome (FACS)

Central Nervous System

  • Attention Deficit Hyperactivity Disorder (ADHD)
  • Autism

Ear Nose Throat Disorders

  • Conductive Hearing Loss

Genetic Disorders

  • Other Rare Genetic Disorders

Other Rare Diseases

  • ADHD
  • Chronic Otitis Media

Fetal Anti-Convulsant Syndrome (FACS)

  • Dysmorphic Features

Chronic Otitis Media

    Conductive Hearing Loss

      Eustachian Tube Dysfunction

        If you've been diagnosed with any of these conditions, we're here to help.

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        Link to this page on PatientGroups.ai