The EHE Foundation

The EHE Foundation is dedicated to supporting patients, advancing research, and providing resources related to epithelioid hemangioendothelioma (EHE). They offer patient services, research initiatives, community support, tissue donation programs, and educational resources. The organization maintains a patient registry, biobank, and provider directory. They engage in advocacy, collaborate with other organizations, and provide financial assistance and informational resources for patients and caregivers. Their activities include hosting conferences, support groups, and fundraising events. They are involved in clinical research, including biobank and registry management, and provide guidance on treatment options, clinical trials, and medical resources. The foundation is affiliated with organizations such as NORD, Rare as One, SARC, and Charity Navigator, and maintains a broad online presence through social media and resource links.