The Ehlers-Danlos Support UK

The Ehlers-Danlos Support UK is dedicated to being the voice of the Ehlers-Danlos syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) community in the UK. Their vision is that people with EDS or HSD across the UK will be connected, heard, supported, and have equitable access to care. In 2024, their work focused on Advocacy and Access, Community and Connections, and Information and Knowledge. They engage in parliamentary advocacy, develop care pathways, provide support groups, offer educational webinars, run an adviceline, and fund research into conditions like vascular EDS.