EHE ITALIA - Non Solo Laura Association

EHE Italia is an organization focused on emangioendotelioma epitelioide, providing patient support, advocacy, and raising awareness. It offers services such as patient education, support groups, and participates in research and clinical activities related to this rare vascular tumor. The organization is involved in various projects, collaborates with hospitals and research institutions, and engages in policy and advocacy activities to improve patient outcomes and promote research in this field. It maintains a website with resources, a social media presence, and encourages donations to support its mission.

The EHE ITALIA - Non solo Laura Association, founded in January 2021, aims to collaborate with the USA, UK, Australia, and Canada to support patients and guide EHE research, creating a synergistic network with specialized centers. Fundraising for research is the primary goal, to bring forward the date when an EHE diagnosis will no longer be a cause for concern. The organization became an official ODV - Voluntary Organization, registered with the RUNTS on June 6, 2023. It is part of the EHE Group, an alliance of independent nonprofit organizations supporting patients and leading research, with a global support network of over 3,000 members in more than 75 countries. The organization is based in Concorezzo, Italy, with the tax code 95294240635. It collaborates with sister charities in the UK, Australia, and the USA, all dedicated to supporting EHE patients and funding research. The mission is to find treatments and a cure for EHE by advancing research and fostering collaboration. The vision is a world where EHE is easily diagnosed and treatable. It is involved in professional research groups like the Italian Sarcoma Group, which aims to improve care for sarcoma patients, and promotes inclusive sports through ASD Tuscia Open Water.