Cambridge Rare Disease Network (CamRARE)
We believe that collectively those affected by different rare conditions and the professionals who work with them can significantly influence service delivery at every level, ensuring their collective needs are met. With recent advances in medicine and genetics, we’re more able than ever before to diagnose and treat rare diseases. We can even see cures on the horizon. Patients are now living longer, so it is vital that health, education and social systems are aware of progress and plan effectively to keep pace with these advances to ensure the best care. It’s vital that we now work together to see these advances make the leap from the lab bench to the bedside and enhance quality of life. CamRARE brings together stakeholders from families, research, industry, business, healthcare and patient advocacy groups making a real and positive difference in the lives of people with rare diseases.
About Us
Contact Information
- Phone: ""
- Email: jo@camraredisease.org
- Website: https://www.camraredisease.org/
Our Location
BCS Windsor House, Station Court, Station Road, Great Shelford, Cambridge, CB22 5NESocial Media
- Twitter/X: @https://twitter.com/camraredisease
- Facebook: https://www.facebook.com/CambridgeRareDisease/
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